My Brother, Matthew.

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Status: In Progress  |  Genre: Children Stories  |  House: Booksie Classic
A girl writes about her little brother, who was born with Down syndrome and sensory processing disorder.

Submitted: May 20, 2017

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Submitted: May 20, 2017



My little brother, Matthew Charles, or M.C. for short, is seven years old.  He was born with Down syndrome, and at the age of two, he was diagnosed with an ASD (autism spectrum disorder): he has sensitivity to certain textures (sensory processing disorder).  Life with him can be challenging, but overall, he is a very good, happy little boy with a sunny personality.

I am his big sister, Heather.  I am 11 years old.  I am Matthew's caretaker and lookout.  I make sure that he has all that he needs and that nobody picks on him; if they do, they're going to have to cross ME first and get past me.  And they won't like it either!  I love my brother very, very much, even when he is being a pain; but most of the time, he can't help it: it's all part of his disabilities.

Even though Matthew is seven, he acts more like he's two or three.  He's just learning his colors and letters and numbers (to five), and he's learning basic animal sounds.  He goes to occupational and physical (as well as behavioral) therapy three times a week at the local therapy clinic not far from our house; it's helped him open up; but he's still happier being by himself rather than being around people, especially if it's people he does not know well or know at all.  Strangers make him very uneasy and when he's upset or mad, he can be more prone to meltdowns where he will just become uncorked and lose it.  

It can be very mortifying, especially if Matthew has a meltdown in public; then I have to try to explain his behavior and keep people from saying rude or really nasty things to my parents about him.  I hate doing this; but it's necessary at times; then people can understand a little better why Matthew acts the way he does.

Life with Matthew is an ongoing learning experience.

Well, I hate to go, but Matthew is pulling on my arm; he wants to show me something.  He's been watching TV; he is addicted to the channel Netflix, where they show movies; and lately he's been going gaga over HappyFeet; that's become his favorite movie.  He can watch it five times in a row and not get sick of it.  He loves the music and he loves anything to do with penguins.  This movie has both elements, so he's happy wheenver it's on.  And it keeps him calm and focused.  I will write more about Matthew next time; stay tuned!

*End of part one!*

© Copyright 2019 Karen Lynn. All rights reserved.

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