My year so far.

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Status: In Progress  |  Genre: Non-Fiction  |  House: Booksie Classic

Submitted: November 20, 2018

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Submitted: November 20, 2018

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January 1 2018 started just like ever other year, hopes and dreams for the new year. We never see or expect life changing events, it is not something we look forward to. In January I was working two full time jobs. It appeared that we were on a path to finally getting ahead. In March I started to have muscle spasms, and cramps. I was a little concerned but not alarmed. In April my hours changed at work and I could no longer work at all my houses so two full time jobs became one full time and one part time. In May I went on a mission trip to Chinle AZ. I had a very hard time walking, and fell a few times. It was then I realized I needed to go see a Doctor. When we got back I made a appointment to see my doctor. Couple days later I had a appointment. He evaluated me, I told him what was going on and about the spasms and cramps. He gave me a magnesium infusion, and took some blood samples. A few days later my world was turned upside down! My past came back something I had hid and not confessed or dealt with. My wife and family had to step away for a short time to deal with what I had done. About a week later after this came to light, once again our world was ripped apart! I was at work and had taken the gentleman I take care of to a picnic, when it was over I took him home. I was helping him with his shower when I fell! Unfortunately I grabbed the shower chair causing it to tip over. He fell in the chair hitting his head on the floor. I called for help cause I couldn't get him back up. The paramedics arrived taking him to the hospital. A few days later he had a brain aneurysm resulting in his death unrelated to the fall. After I had fallen at work I called and made another appointment with my doctor. When the appointment arrived he evaluated me again and stated I believe you have a tumor on your spine, he ordered a MRI. The MRI was completed in the middle of June, it would be a couple of weeks before I would get the results. It showed I had a bulging disc. A appointment was made to see a orthopedic surgeon in September. In August one month to the day my wife and family returned home. During this time away my wife still supported me being by my side as these events were unfolding. We were greatful I didn't have a tumor on my spine, but were concerned about how bad the bulging disc may be. September appointment arrived, as the doctor was explaining the MRIs asking me about my symptoms. He said the bulging disc is not bad, it should correct on its own. Plus it should not be causing all the symptoms you are exhibiting, it could but I wouldn't bet on it. I want to set you up a appointment for a EAG and see a Neurologist, and a orthopedic specialist to get a ,prosthetic for your ankle. A couple days later I had my EAG and the Neurologist said I need to see you soon, it can not wait till Nov 1. I asked him what the test showed? He said I had neuropathy, but he had to review the data to see what kind. The following week Sept 17 I had my appointment with him. He said the diagnose that would rock my world the very words I was not prepared to hear. He said it appears you have ALS. I didn't know what to say, or how to respond. He said I want to do some more MRIs and more blood tests. He was trying to disprove his initial diagnosis. We went out to the van and prayed to God. Following this I fell at work again this time at my second job. I had to step away from this job. So now I have one job, which is only 32 hours a week now. This would only go on for a few more weeks. At the beginning of October I fell again at work. At that moment I knew I could no longer work safely. So I took my vacation, and started thinking about what I was to do. The test were done on Oct 11, then on October 22nd I got the news that he was unable to disprove his diagnosis, that he was almost certain I had ALS. He made me a referral to a neuromuscular specialist in Oklahoma City. On October 23rd I made it known that I had been diagnosed with ALS. A week later my wife and I celebrated our 23rd Wedding Anniversary. During this time it is a emotional rollercoaster. We applied for my SSI, and other benefits. We contacted the Oklahoma ALS support foundation. It took us two weeks to get the insurance approval and the appointment scheduled for my neuromuscular appointment. Had the appointment on November 20th after a evaluation he too believes I have ALS! More test to come!

Don't be sad for me, for I am going to do what I love to do for as long as I am alive! "I may have ALS, yet ALS dosen't have me!"


© Copyright 2019 Orlando Houston. All rights reserved.

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